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Protect your ass is the number one (#1)
rule!
If you don't remember anything
else, remember this!
11/23/2009: It took me almost 10 years to get my first
pressure sore and I am still fighting it today --more than 2 years after I got it.
This will change your life for the worse. Trust me! I used a Jay2 cushion for
over 10 years and just the year before last got my first pressure sore. The
cushion protected me this long so I stayed with what worked. I stay in my
wheelchair for 12+ hours a day with virtually no pressure relief (my bad!). I
was on a device called a Wound-Vac which pulls a vacuum on your wound and
promotes healing. It really works. I was on it a little over a year and my wound
which they called a Stage 4 wound had healed to about a Stage 1 I'm guessing.
After I moved to Conroe, Texas I started going to Conroe Regional Wound Care
Center and was doing Ok till about August of 2008 when my doctor (I'm
leaving my doctor's name out on propose) recommended I have a wound flap surgery
to close it up. In October 2008 I was operated on by a plastic surgeon (I'm
leaving his name out also) and sent back to a rehab unit to heal for 30 days. 2
days later I was advised the flap surgery was a failure so they performed
another surgery the next day. 8 days later the stitches pulled out for no apparent
reason. At this point the plastic surgeon said both operations failed and he had
no explanation why and said I should just go home and continue wound care as I
had in the past. The problem was by now I had lost all my strength because I was
ordered to lie flat on my back for weeks and now I could no longer transfer or
do much without help. After I gained strength at home, I continued to get wound
care up to 2/27/2009 when I reported I was sick and felt I had an infection. My
doctor dismissed it as a common UTI and two weeks later I had full-blown MRSA
staph infection which deteriorated my wound greatly causing new wounds I never
had before and old wounds were enlarging. I decided to get a 2nd opinion since
my doctor ignored my warning signs of prevailing infection. To make a long story
short this was jumping out of the pan into the fire. This other wound care
facility treated me for a few months and ordered a bone scan which revealed I
had osteomyelitis, a bone infection, which prevented my healing. My
previous doctor had never ordered this test or even considered it. I was
getting better slowly when the 2nd wound care center advised doing hyperbaric
chamber therapy and said that was the only thing that would cure me (my
osteomyelitis). I did this for 3 days only to be told it was not covered by
Medicare since they were not a hospital-affiliated wound care unit. They never
checked to see if Medicare would pay before advising me of this treatment. This
attending physician denied care since he could not get paid from Medicare for
this hyperbaric treatment and falsely accused me of undermining my wound care
through my wound care agency. This wound care center relied totally on the
hyperbaric treatment (for which they made their money) and never prescribed an
antibiotic or other medicine to heal the osteomyelitis. I had only one
option at this point, since no one else would take me, and that was to drive 30
miles (one-way) to the only other wound care center in my area that would take
me. I've been at this wound care center for several months and finally
have a doctor who knows what he's doing, so my future is looking much better
these days. This doctor has prescribed antibiotics and is periodically
testing to see if the "osteo" is cured. He also advised me to
get on a better cushion which would relieve pressure. I have tried for
several months using the Roho cushion which was much better for me than the
Jay2. I am now waiting on an alternating pressure cushion which I am told
will relieve all pressure, and I'm hoping by the testimonials I've read that
this will also improve my healing. I'm probably still several months from
being healed/cured, but at least things are finally going in a positive
direction. However, all this took over 2 years to happen, so watch your
A**!
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